Indigenous Dementia Services Study (IDSS)
What has been done
The study team has maintaining a high level of community involvement since the inception of the study. Individual community council consultation and feedback takes place at the commencement of each study phase. The results of the project are then presented to the community and feedback is received before the findings are disseminated. All participants in previous and ongoing studies have been informed of relevant results. We will continue to do this.
A culturally appropriate cognitive assessment tool Kimberley Indigenous Cognitive Assessment, KICA has been validated and developed and it is now widely used by health professionals in remote and rural areas of Australia.
The research group has recently completed a large prevalence study assessing dementia and other aged care syndromes in the Indigenous population of the Kimberley.
A poster [ PDF 6.6MB ] has been developed to increase the awareness of dementia.
The research team is committed to trialling and evaluating proposed dementia models of care and is currently conducting scoping studies, in-depth interviews and focus groups in the Kimberley region.
This programme is overseen and informed by a Steering Committee comprising of service providers, carers and community council members. The project team continues to liaise with members of communities and councils to ensure appropriate standards are met and relay information as required.
Where to from here
In mid 2008, the team will repeat the process to another region, to determine differences and extend the scope of the project.
This study is the third phase of research.
Additional information on the study is available below.